patient organizations

patient organizations

Patient Organizations Sobi Supports

 

We recognize the importance of learning from patients and their families about the challenges they face, and the success and limitations of their current treatment options.

We actively partner with multiple organizations to raise awareness and to advocate on behalf of patients and their communities.

Rare Disease

CORD

Arthritis/Inflammation

cassie+friends

Hereditary ATTR (hATTR)

Hereditary ATTR (hATTR)

Hereditary Tyrosinemia Type 1 (HT-1)

GAETQ

Paroxysmal Nocturnal Hemoglobinuria (PNH)

Paroxysmal Nocturnal Hemoglobinuria (PNH)
Paroxysmal Nocturnal Hemoglobinuria (PNH)

inline styles. do not delete and make sure its the last item.